Systemic Juvenile Idiopathic Arthritis
In November 2020, Sophia started showing what physicians would say are common signs of a virus (spreading rash, high fevers, body pain). After many failed medical visits, she was admitted into Children’s. In January 2021, Sophia was diagnosed with systemic juvenile idiopathic arthritis (SJIA). SJIA is a rare auto inflammatory disease that attacks joints and organs. Despite research efforts, the cause of SJIA is still unknown leaving patients and families uncertain about the future.
Sophia has been on a variety of medications to control her systemic features, like the rash and fever, as well as medications to control arthritis. Her systemic features are under control at this point, but the arthritis is very persistent. She goes to physical therapy and occupational therapy weekly, has home injections, and a monthly infusion to support her condition.