Alejandra Burgos Juvenile Idiopathic Arthritis Youth Honoree Eight-year-old Alejandra was diagnosed with juvenile idiopathic arthritis when she was just one year old. Her family couldn’t understand why she could not crawl or move her legs like all the other babies her age, and it took many tests to finally receive an accurate diagnosis. Indeed, kids (and babies) get arthritis, too! Living with this disease has been difficult for Alejandra and her family, even with her mom being a trained medical professional. She takes medications daily and receives weekly injections – but this doesn’t slow down Alejandra from pursuing what she LOVES. Alejandra enjoys riding horses, taking ballet classes, and playing soccer. Although she dreams of a day when she doesn’t have to take daily medication or receive weekly shots, she understands this is what she needs to do to live a healthy and active life. She has hope that by raising funds and increasing awareness, she can help to one day find a cure for the disease that affects 300,000 children just like her. Alejandra is proud to be 2019 Youth Honoree for the Jingle Bell Run Orlando and hopes you’ll join her on December 7! Join Alejandra in the fight against arthritis, register or donate today!
Carol Henry Lee Rheumatoid Arthritis Adult Honoree Carol Lee is no stranger to life with arthritis – it has been a part of her for the last 46 years. A freshman on the UF tennis team, she woke up one morning with “tennis elbow” that migrated to multiple joints over the course of time. Three years later, pioneering doctors at UF’s Shands Hospital diagnosed her with rheumatoid arthritis and prescribed 16 aspirin and 14 hours of rest daily. She was told to never have children and to prepare for a crippled life within the next 10 years. After a small bout of depression, Carol decided to deny her grim diagnosis and to embrace the fullness of life available to her. Carol writes, “There have been good years and bad. Some days I feel like a million bucks and some nights I would give anything for someone to cut off my arm or leg. LabCorp is my second home because I’ve had blood tests every three months since 1976. I’ve had 4 surgeries and have taken some scary drugs just to keep moving and I’d be a rich woman if I didn’t spend so much on drugs, doctors, and equipment. The worst part is the unpredictability of the disease - I never know when I will have to cancel plans. [But] there is a bright side. I had good insurance with AT&T (now on Medicare), earn a good living and haven’t needed to go on permanent disability. My managers and colleagues at Bonnier are 100% supportive. My friends and family are always there for me... and God has blessed me.” Currently Carol is gratefully in remission. Her advice? Rest, eat a healthy diet, keep moving and most importantly - stay positive! Carol is now focused on partnering with the Arthritis Foundation to raise money for a cure and to fight for policy changes that would create more affordable access to the drugs people need. Carol is proud to be the 2019 Adult Honoree Jingle Bell Run Orlando. Join Carol in the fight against arthritis, register or donate today! |
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